A New Beginning

cropped-letters-637440_1920.jpg

Dear Friends,

Hello and welcome!  I am so glad that you have decided to take some time out of your day and spend it with me.  I hope that we get to know each other better over the coming months, and years.  In 2015, I started a health-themed blog, The Eclectic Data Hunter.  I enjoyed it and it gave me a creative outlet for educating others.  However, after my diagnosis with hemiplegic migraines, fibromyalgia, and an aortic valve defect, I struggled to continue writing.  Despite an outpouring of support from family and friends, I did not feel that anyone could relate to me.  I found that my daily life no longer resembled that of someone in their 30s with a young family and a promising career.  There was so little information about my migraines on the web and I never felt as if I completely meshed with others in local support groups.  The fact was that I felt incredibly alone in my health struggles.

Several months ago, on a lark, I decided to try Twitter.  I was feeling particularly angsty and those who I met in my earliest days on the platform could surely attest to that.  But then, I noticed that people started to talk to me.  They were actually interested in what I had to say.  I was shocked, especially since I had heard such terrible things about the trolls of Twitter.  As the days passed, I started to connect with scientists, health care professionals, health educators, those with chronic illness, and those caring for those with chronic illness.  I was invited to participate in chats, attend webinars, and sign up for conferences.  In one of the supposedly worst corners of the internet, I found friendship, support, and a whole new world passionate patient advocates.  Their stories and strength of character inspired me and I found that as each day passed, I gained a growing sense of purpose.  Coming from a background in public health and education, I found that I could offer a unique perspective both as a patient and as a health professional.  While my advocacy work is just in its relative infancy, I am committed to making my impact on the world, by giving others hope and the tools to become an involved and empowered patient.

I hope to see you again soon.

Faithfully,

Rie

 

 

Advertisements

2 thoughts on “A New Beginning

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.