Saving Yourself

Dear Friends, Patient advocacy relies heavily on being able to create a narrative, and by extension, sell yourself.  The more gripping or devastating the story, the more advantageous it is to use, at least from a marketing perspective.  Getting people to empathize with our struggles, allows for the creation of new ideas, treatments, and solutions.  … Continue reading Saving Yourself

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The Stories To Come

Dear Friends, There has been a gentle mist falling over the last three days.  The greyish white cast of the sky has blotted out any trace of sunshine and the days feel damp and dreary.  This is the kind of weather that leaves you feeling unsettled as the ache creeps into your bones.  Admittedly, I … Continue reading The Stories To Come

A Lesson In History: Clinical Trials Mean Patients Have Power

Disclaimer: This piece has been entered in the Patients Have Power Writing Contest, run by Clara Health.  It is designed to raise awareness about clinical trials and the importance of breakthrough research.  I am passionate about this cause, as it brings hope to millions of individuals, like me, who have chronic illnesses for which there … Continue reading A Lesson In History: Clinical Trials Mean Patients Have Power

Friendship When Chronically Ill: The Importance of Finding Your Core

Dear Friends, I sit here on a relatively gloomy Tuesday, contemplating the deliciousness of ice cream (which is coconut 'milk' based due to food allergies).  I am also having serious thoughts about how we, as a society, define a friend.  I recently had my online friendships criticized as "not real" and that stung terribly.  If … Continue reading Friendship When Chronically Ill: The Importance of Finding Your Core