The Sadness of My Notes on Social Isolation & Loneliness

Dear Friends, On Tuesday, May 29, I had the honor of presenting at a webinar hosted by the Society for Participatory Medicine.  As my very first online webinar, I admit that I was nervous.  I have presented before, but in a far different capacity and with less technology involved.  I wanted to provide my notes … Continue reading The Sadness of My Notes on Social Isolation & Loneliness

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When The Lightening Strikes

Dear Friends, It is an incredibly humid day, with a heat index so high we've cancelled school locally.  We are due for storms to roll in, but I do not know if or when they will materialize.  There is a sense of almost suffocating as I sit here in the dense air and pray for … Continue reading When The Lightening Strikes

A Lesson In History: Clinical Trials Mean Patients Have Power

Disclaimer: This piece has been entered in the Patients Have Power Writing Contest, run by Clara Health.  It is designed to raise awareness about clinical trials and the importance of breakthrough research.  I am passionate about this cause, as it brings hope to millions of individuals, like me, who have chronic illnesses for which there … Continue reading A Lesson In History: Clinical Trials Mean Patients Have Power

Friendship When Chronically Ill: The Importance of Finding Your Core

Dear Friends, I sit here on a relatively gloomy Tuesday, contemplating the deliciousness of ice cream (which is coconut 'milk' based due to food allergies).  I am also having serious thoughts about how we, as a society, define a friend.  I recently had my online friendships criticized as "not real" and that stung terribly.  If … Continue reading Friendship When Chronically Ill: The Importance of Finding Your Core

Rie Needs Rie-lief: A Saga of Acute Injury

During this time of year, my thoughts grow increasingly contemplative.  I prod the inner recesses of my mind, seeking to extract some bit of wisdom I have forgotten.  Though the days are growing longer again, as this hemisphere begins its slow tilt towards the sun, there is a certain gloom hanging upon everything.  The starkness … Continue reading Rie Needs Rie-lief: A Saga of Acute Injury