Dear Friends, Sometimes I dance in my kitchen. I close my eyes and listen carefully to a beat in my head. Tap. Tap. Tap. My body sways slightly and muscles strain, lifting me up on my toes. I reach one arm out in a fluid motion and then the other. I stack my spine, sliding … Continue reading Dancing Through The Pain
Disclaimer: This piece has been entered in the Patients Have Power Writing Contest, run by Clara Health. It is designed to raise awareness about clinical trials and the importance of breakthrough research. I am passionate about this cause, as it brings hope to millions of individuals, like me, who have chronic illnesses for which there … Continue reading A Lesson In History: Clinical Trials Mean Patients Have Power
Dear Friends, Given the heavy nature of my post last week, I decided we all needed something lighter. Recently, I was talking with my good friend Kim, of AutonomicRN- A "Dummies" Guide To Learning To Live As A Patient Instead Of A Nurse. Given that both of us live with migraine, autonomic dysfunction, and chronic … Continue reading If You Are Laughing It Can’t Hurt
Poetry can be a creative outlet and source of #selfcare when you have a #chronicillness. I wrote a poem about #fibromyalgia fog!