Dear Friends, I have been mired in the land of self-pity and just general misery. There are things going on in my life and they are taking nearly all of my mental energy. While some people find it easy to write about the gritty and very personal things, I don't. I have certain boundaries that … Continue reading Chronic Pain, How Fun
I wanted to share this post from Beth Morton, another one of my favorite friends from the Twittersphere. In it, she so eloquently explores the isolation and loneliness often associated with chronic illness. If you enjoy it, which I know you will, I really recommend following her blog, The Counterfactual Brain. You can also connect with her on Twitter @beth_morton, where she is absolutely brilliant when it comes to research and sharing cutting-edge advances for migraine. She also makes a great friend!
I have been trying for a while to write about loneliness and chronic illness, but everything comes off as depressing and that’s not my intent. I’ve considered just not writing on this topic, but loneliness seems like an important one. Studies have shown it is related to an increase in heart disease and even premature death. Loneliness isn’t exclusive to those of us with chronic illness, but I suspect it is something that we face disproportionately. This struck me most vividly as backlash mounted over Facebook’s recent privacy issue. People calling on others to delete their Facebook accounts don’t understand what it is like when social media is your main source of social contact. When I look back on the last five years, dealing with two chronic illnesses has taken a lot from me, but the loss of social connections is what has been hardest.
It started in 2013…
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This Friday, I am doing something a little different. I am sharing this blog entry from one of my favorite people ever. One of our most recent bonding experiences has been over the discussion of occipital neuralgia. This is another diagnosis we have in common, although my diagnosis is more recent. Recent, as in only three days in. I am a proud recipient of my first nerve block, which has made a world of difference in the quality of my life. At the same time, I am so afraid of getting my hopes up, just to have them dashed. As I was told recently, the road to recovery is not linear. There will be times where I make progress and times where I experience a setback. It is not exactly how I want things to go, but it is better than not experiencing progress at all.
I am going to wrap this up, so I can return to icing my head. I hope you enjoy this post and give Autonomic RN a follow.
At the end of February, I wrote about my upcoming nerve decompression surgery. Within that post, there was a promise that I would keep everyone updated. Here it is.
Yesterday was exactly five weeks post-op! The time has gone by so fast, and at the same time has crept by while dealing with pain and the recovery period. After the initial shock had faded away about having two stunning black eyes, I had to keep pinching myself. There was no way that this could be reality. When I went in for surgery, I had a whopping migraine and when I came out; nothing! Of course, the surgical pain was not an enjoyable experience but none of it was migraines.
I have been 100% migraine free for five entire weeks. My hope for the surgery was that the migraines would be less frequent and severe. That would have been a win…
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Dear Friends, Given the heavy nature of my post last week, I decided we all needed something lighter. Recently, I was talking with my good friend Kim, of AutonomicRN- A "Dummies" Guide To Learning To Live As A Patient Instead Of A Nurse. Given that both of us live with migraine, autonomic dysfunction, and chronic … Continue reading If You Are Laughing It Can’t Hurt
CW: death Dear Friends, There is something that is weighing on my heart and I needed to get it out. I need to see the words form, flying across the page in a flash, and spilling out like water. I need to talk about death and I need to talk about grief. I generally try … Continue reading Grief: Chronic Illness and The End
Dear Friends, Self-care. I want you to stop right now and think of what the term means to you. The term is ubiquitous and conjures the idea of spa days or doing something out of the ordinary to indulge. Maybe you are thinking of your overloaded Pinterest board with inspiring quotes and recipes for homemade … Continue reading Self-Care:Caring For and About Yourself
During this time of year, my thoughts grow increasingly contemplative. I prod the inner recesses of my mind, seeking to extract some bit of wisdom I have forgotten. Though the days are growing longer again, as this hemisphere begins its slow tilt towards the sun, there is a certain gloom hanging upon everything. The starkness … Continue reading Rie Needs Rie-lief: A Saga of Acute Injury
Poetry can be a creative outlet and source of #selfcare when you have a #chronicillness. I wrote a poem about #fibromyalgia fog!
Dear Friends, It has been some time since my last post, but this doesn't mean that I have forgotten you. When you live with any chronic illness, sometimes you need to think long and hard about where you will expend your energy. As of late, my energy has been wrapped up in various things I … Continue reading The Nothingness Inside
Hello Friends, Autumn is traditionally my favorite season. It is time to put away the last vestiges of an uncomfortable and humid New England summer. As the pumpkins reach their prime, the trees are ablaze in a riot of colors and brisk northern air indicates it is time to start baking and snuggling with … Continue reading November Pain