Saving Yourself

Dear Friends, Patient advocacy relies heavily on being able to create a narrative, and by extension, sell yourself.  The more gripping or devastating the story, the more advantageous it is to use, at least from a marketing perspective.  Getting people to empathize with our struggles, allows for the creation of new ideas, treatments, and solutions.  … Continue reading Saving Yourself

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Grief: Chronic Illness and The End

CW: death Dear Friends, There is something that is weighing on my heart and I needed to get it out.  I need to see the words form, flying across the page in a flash, and spilling out like water.  I need to talk about death and I need to talk about grief.  I generally try … Continue reading Grief: Chronic Illness and The End