Saving Yourself

Dear Friends, Patient advocacy relies heavily on being able to create a narrative, and by extension, sell yourself.  The more gripping or devastating the story, the more advantageous it is to use, at least from a marketing perspective.  Getting people to empathize with our struggles, allows for the creation of new ideas, treatments, and solutions.  … Continue reading Saving Yourself

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A Bad Year For The Roses

  Dear Friends, I started this post days ago, erased it, and then started it again.  By the time I got to today, it was a semi-living shell surviving solely on a mix of wretched emotions.  I am not just talking about the type that are a bother, but more the kind tied to things … Continue reading A Bad Year For The Roses

Friendship When Chronically Ill: The Importance of Finding Your Core

Dear Friends, I sit here on a relatively gloomy Tuesday, contemplating the deliciousness of ice cream (which is coconut 'milk' based due to food allergies).  I am also having serious thoughts about how we, as a society, define a friend.  I recently had my online friendships criticized as "not real" and that stung terribly.  If … Continue reading Friendship When Chronically Ill: The Importance of Finding Your Core