Dear Friends, Patient advocacy relies heavily on being able to create a narrative, and by extension, sell yourself. The more gripping or devastating the story, the more advantageous it is to use, at least from a marketing perspective. Getting people to empathize with our struggles, allows for the creation of new ideas, treatments, and solutions. … Continue reading Saving Yourself
Dear Friends, There has been a gentle mist falling over the last three days. The greyish white cast of the sky has blotted out any trace of sunshine and the days feel damp and dreary. This is the kind of weather that leaves you feeling unsettled as the ache creeps into your bones. Admittedly, I … Continue reading The Stories To Come
Dear Friends, I sit here on a relatively gloomy Tuesday, contemplating the deliciousness of ice cream (which is coconut 'milk' based due to food allergies). I am also having serious thoughts about how we, as a society, define a friend. I recently had my online friendships criticized as "not real" and that stung terribly. If … Continue reading Friendship When Chronically Ill: The Importance of Finding Your Core
During this time of year, my thoughts grow increasingly contemplative. I prod the inner recesses of my mind, seeking to extract some bit of wisdom I have forgotten. Though the days are growing longer again, as this hemisphere begins its slow tilt towards the sun, there is a certain gloom hanging upon everything. The starkness … Continue reading Rie Needs Rie-lief: A Saga of Acute Injury
Poetry can be a creative outlet and source of #selfcare when you have a #chronicillness. I wrote a poem about #fibromyalgia fog!