Dear Friends, Patient advocacy relies heavily on being able to create a narrative, and by extension, sell yourself. The more gripping or devastating the story, the more advantageous it is to use, at least from a marketing perspective. Getting people to empathize with our struggles, allows for the creation of new ideas, treatments, and solutions. … Continue reading Saving Yourself
Dear Friends, It is an incredibly humid day, with a heat index so high we've cancelled school locally. We are due for storms to roll in, but I do not know if or when they will materialize. There is a sense of almost suffocating as I sit here in the dense air and pray for … Continue reading When The Lightening Strikes
CW: death Dear Friends, There is something that is weighing on my heart and I needed to get it out. I need to see the words form, flying across the page in a flash, and spilling out like water. I need to talk about death and I need to talk about grief. I generally try … Continue reading Grief: Chronic Illness and The End
Dear Friends, Self-care. I want you to stop right now and think of what the term means to you. The term is ubiquitous and conjures the idea of spa days or doing something out of the ordinary to indulge. Maybe you are thinking of your overloaded Pinterest board with inspiring quotes and recipes for homemade … Continue reading Self-Care:Caring For and About Yourself
Poetry can be a creative outlet and source of #selfcare when you have a #chronicillness. I wrote a poem about #fibromyalgia fog!